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Please be patient, sometimes some links are not valid so we are manually checking the links and validating them.The descriptive epidemiology of sickle cell disease is part of the description of a disease continuum. To be robust, descriptive epidemiology must identify general population prevalence and incidence. The tools for this are census data and vital records. As we have used to identify the population prevalence and incidence of sickle cell disease, we have also measured the population prevalence and incidence of the population’s most immediate risk factors for sickle cell disease, such as prenatal exposure to malaria and nutritional deficit. For the first time in any population, we have measured the population’s knowledge of sickle cell disease and its potential treatment. Other research will examine the relationship of genetic and demographic factors to sickle cell disease. As these data are processed, they will be prepared for presentation in this database. The demographic results, both preliminary and ongoing, will be in a separate data file. This will be integrated with data from our previous work on the prevalence of red cell indices. Our data collection methods have already been useful to a number of investigators for analytical studies, and the quality of the data has been good as judged by external reviews.